Sandrine - Thiel Behnke dystrophy - why do I become an Ewen? (FR 2019)
Sandrine, mother of 2 children with Thiel Benhke’s dsytrophy, explains the daily impact of this disease. A disease that is more of a particularity than a real disease, according to Sandrine. She explains why she decided to testify about her experience with Thiel Benhke.To follow her, join us at https://app.ewenlife.org and select Thiel Benhke’s Dystrophy.
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