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EwenFlix testimonies

Saliha - Rendu Osler - France - Talking to city doctors about the disease (ep1) (FR 2020)

Carla - Canada - Granulomatous mastitis in my daily life (EN 2020)

Sabrina and Sylvain - France - KCNQ2 - Guilt and Rare Disease - Gross Testimony (ep1) (FR 2020)

Aurore - Amniotic Bands - Why do I testify? (2019) (FR)

Sandrine - Rett syndrome - Why do I testify? (2019) (FR)

Sandrine -Rett syndrome- Going abroad for the care of my daughter - Part 1 (FR 2020)

World Autoinflammatory Awareness Month 2020(EN 2020)

Melanie - France - LPAC - I wasn’t making things up (Ep2) (FR 2020)

Sandrine- Rett Syndrome - She’s my daughter before a disease (2019) (FR)

Kncq2 - Sabrina - Why do I testify? (2019) (FR)

Sandrine - Rett syndrome - taking care of yourself for your sick child (2019) (FR)

Lyse - France - Nemo syndrome - Becoming a caregiver changes everything (2020) (FR)

Danielle - France - Kcnq2- learn sign language to a non-verbal child - tips

Emeline - France - Gitelman syndrome - "I eat: it’s not anorexia but Gitelman" (ep1) (FR 2020)

Kncq2 - Sabrina - the school or the choice of inclusion (2019)(FR)

Chantal - France - Osteogenesis imperfecta - Must fight, not the choice (ep1) (FR 2020)

Live Joel de Rosnay - Epigenetics - Caring for Yourself Impacts Our Genes and Health (2020) (FR)

Magali - Phenylketonuria - Why do I testify? (2019) (FR)

Carla - Granulomatous mastitis - why am I testifying? (FR 2019)

Anaelle - France - Primary immune deficiency - immune deficiency in my childhood (Ep1) (FR 2020)

Michelle and Nicolas - France - panhypopituitarism and its treatment (2020) (FR)

Aurore - France - Amniotic bands - Living with pain (FR 2019)

Sandrine - Rett Syndrome - Going abroad for the care of my daughter - Part 3 (FR 2020) (FR 2020)

Sandrine - Rett Syndrome - Going abroad for the care of my daughter - Part 2 (FR 2020) (FR 2020)

Claire - France - Turner’s syndrome - When Turner arrived in our lives (2020) (FR)

Virginia - France - Bartter syndrome type 3 -Why do I testify? (EN 2020)

Danielle - Kcnq2 - Teach Sign Language to a Child with KCNQ2

Sandrine - Rett syndrome - Belgium - I become a therapist for my daughter (2020) (EN)

Bronwen - United Kingdom - My Life with amniotic band syndrome (EN)(FR)(2020)

Rose - Ivory Coast - GNE Myoapathy - Having a rare disease in Africa (2020) (FR)

Gwendoline - France - Adrenal insufficiency - Coping with isolation (2020) (FR°

Sandrine - Thiel Behnke dystrophy - why do I become an Ewen? (FR 2019)

Aurore - Amniotic bands - From bullying to self-confidence (FR 2019)

Melanie - LPAC Syndrome - For others to save time (Ep1) (FR 2020)

Virginia - France- Bartter syndrome - my daily life with invisible disability (EN 2020)

Family Mediterranean Fever - It is not appendicitis(Ep1)(FR 2020)

Virginia - Bartter’s syndrome - what I would like to hear and not hear (FR 2020)

Les vidéos contenues dans EwenFlix ne se veulent pas un substitut à un conseil médical professionnel
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